The problem with waiting so long to post is that I kind of forget the exact order of things. So I think my first day in DC was a doctor appointment day, but I'm really not sure if that is 100% true. But let's go with it.
For a more detailed account of the appointments and test and stuff, you can see my caringbridge site.
For a basic summary, I had a bunch of really horrendous tests and FINALLY GOT SOME ANSWERS!!!!
I have some instability at various levels in my spine with flexion and extension. But then with rotation, my C1 and C2 are way to wibbly wobbly. I guess during the test I was only one or two degrees away from dislocating my neck under my own muscle power! Yikes! So that means several things:
1. I am apparently lucky to still be alive and not a quadriplegic
The doc explained it that my brainstem and spinal cord is like a banana And you can only twist a banana so much until you start to have problems.
2. I have to wear a beast of a neck brace anytime I'm moving to prevent a dislocation
3. I am having surgery on May 14th to get my C1 and C2 fused
They are taking a part of my rib (que Adam and Eve jokes) and using it to stick my C1 and C2 vertebra together. I will be in the hospital for about three days, laying in bed for about eight days, and then I can fly home from DC to do the rest of recovery.
I was skeptical about the wibbly wobbly neck being the cause of my shaky time, but it's been several weeks of wearing the neck brace and I haven't really had shaky time! I had a local neurologist appointment last Tuesday and they said my reflexes and strength and stuff look better too! I'm so flipping excited that I found out what was causing the weakness and that I can control it. Before, I worried that I would just waste away not knowing what was happening or I would find out that what was causing the weakness was progressive. Plus, I only need one surgery to fix it. I may have other fusion surgeries or the tethered cord surgery in my future, but it's not something I have to worry about yet. :0)
And here is my looking fly in my super sexy neck brace:
For a more detailed account of the appointments and test and stuff, you can see my caringbridge site.
For a basic summary, I had a bunch of really horrendous tests and FINALLY GOT SOME ANSWERS!!!!
I have some instability at various levels in my spine with flexion and extension. But then with rotation, my C1 and C2 are way to wibbly wobbly. I guess during the test I was only one or two degrees away from dislocating my neck under my own muscle power! Yikes! So that means several things:
1. I am apparently lucky to still be alive and not a quadriplegic
The doc explained it that my brainstem and spinal cord is like a banana And you can only twist a banana so much until you start to have problems.
2. I have to wear a beast of a neck brace anytime I'm moving to prevent a dislocation
3. I am having surgery on May 14th to get my C1 and C2 fused
They are taking a part of my rib (que Adam and Eve jokes) and using it to stick my C1 and C2 vertebra together. I will be in the hospital for about three days, laying in bed for about eight days, and then I can fly home from DC to do the rest of recovery.
I was skeptical about the wibbly wobbly neck being the cause of my shaky time, but it's been several weeks of wearing the neck brace and I haven't really had shaky time! I had a local neurologist appointment last Tuesday and they said my reflexes and strength and stuff look better too! I'm so flipping excited that I found out what was causing the weakness and that I can control it. Before, I worried that I would just waste away not knowing what was happening or I would find out that what was causing the weakness was progressive. Plus, I only need one surgery to fix it. I may have other fusion surgeries or the tethered cord surgery in my future, but it's not something I have to worry about yet. :0)
And here is my looking fly in my super sexy neck brace:
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| I'll have to get a more recent picture up now that I have decorated it with stickers! |
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